Showing posts with label Sohana Research Fund. Show all posts
Showing posts with label Sohana Research Fund. Show all posts

Monday, June 23, 2014

An urgent call from Danielle de Niese

Tomorrow, Danielle de Niese is giving a recital at St John's Smith Square in aid of the Sohana Research Fund. Her programme is glorious - from Handel to Fauré and Delibes, Puccini to Gershwin. Book here.

Danni says:

Hey Everyone! (PLEASE FORWARD AROUND!!)

I WANT TO INVITE YOU ALL TO COME AND JOIN ME TOMORROW IN LONDON AT ST JOHN'S SMITH SQUARE IN AID OF A LITTL GIRL CALLED SOHANA WHO SUFFERS FROM RECESSIVE DYSTROPHIC EPIDERMOLYSIS BULLOSA (“RDEB”). RDEB IS AN INCURABLE GENETIC SKIN BLISTERING CONDITION. IT IS PROGRESSIVE AND INCREDIBLY PAINFUL AND LITTLE SOHANA HAS HAD THIS CONDITION ALL HER YOUNG LIFE!  

PLEASE COME AND LET'S CELEBRATE AN AMAZING CAUSE, UPLIFT SOHANA'S SPIRITS AND HELP HER TO BELIEVE THAT WITH OUR AID AND SUPPORT TOWARDS RESEARCH, WE CAN FIND A CURE FOR HER AND THE MANY OTHER KIDS WHO SUFFER FROM THIS RARE CONDITION.

IMAGINE WHAT IT WOULD BE LIKE TO HAVE RDEC: IT IS LIKE HAVING BURNS THAT TAKE A LONG TIME TO HEAL – IF THEY HEAL AT ALL. BURNS THAT FLARE UP TO EVEN THE SLIGHTEST TOUCH.

PLEASE PLEASE COME AND CONTRIBUTE TO THIS CAUSE. YOU CAN SEE MORE ABOUT SOHANA AND THE DEBRA RESEARCH BEING DONE AT:

http://www.sohanaresearchfund.org/

AND

https://www.debra.org.uk/

THANK YOU FOR READING THIS, LOVE TO YOU ALL AS ALWAYS…

DANNI

PLEASE FORWARD AROUND TO AS MANY PEOPLE AS POSSIBLE.
XOXO


Booking details here.